Our heart story - a glimpse 
into the life of a heart family and what living with a child with CHD 
looks like as a family.  Although all heart journeys are unique, I 
believe it would be fair to say there are some Crazy {with a capital 
"C", mind you!} ups and downs.  Fighting for your child's life one day, 
and fighting for a sense of normalcy the next.
Our CHD 
journey began on September 30, 2009, when our little bundle of joy, 
Liam, was born.   After 9 months of a wonderful and uneventful 
pregnancy, I went into labor naturally that morning, headed to the 
hospital and Liam was born a few short {well, long in my book!} hours.  
Because I went into labor one day shy  of full term, 36 weeks, 6 days, 
(can anyone say   
God’s perfect timing??) the NICU team was  on stand by as a precaution. 
Shortly after birth, the NICU team noticed Liam was not getting  enough 
 
oxygen and also had a "slight" heart  murmur….they assured us they dealt
  with 
 this all the time and that Liam  just needed to be monitored for  
awhile  on oxygen.  While to doctor continued work on me, the nurse 
anxiously handed Liam to me all swaddled up,  telling us to give him a 
quick hug and kiss, snap a picture and that we would see him again real 
soon.  She whisked him off after only a quick introduction and about 5 
hours later, we got  
the  news that changed our world  forever.
 "Your child’s heart is broken and he has  to have  surgery to fix it."
When
 the cardiologist initially came in, he was saying Liam had a complex 
heart defect, and to really get a good diagnosis, he would need to be 
transferred immediately to the hospital down town.  Shocked and scared 
at this news, we were devastated.  HOW could we not have known this?  
WHY have we never even heard of this?  It must be a VERY RARE condition,
 we thought to ourselves.  Our faith in God proved us well and 
encouraged us to know He was in control and had Liam in His hands, the 
best place he could be.  But the questions never ceased in my 
head...what if, how, WHY....
Later that night, Liam was
 transferred to the big city hospital in one of those clear cocoons {or 
so I call them}.  It seemed very surreal to me seeing him in that big 
clear "box", what I had only really seen on TV and in movies.  In fact, 
when we were saying our goodbyes, the nurse cut off my "mommy wristband"
 {the ones you and your baby both wear to make sure the nurses can see 
they match up for security purposes - ours actually would set off an 
alarm if the baby went more than a certain distance from me} and I had 
no recollection afterwards of that even happening.  I remember very 
clearly though, being wheeled back into my hospital room with empty arms
 and silence awaiting me....babies crying down the hallways, in all the 
other rooms, except for mine.  The stark contrast of that moment was 
heart breaking for me and something I will never forget.  While Dustin 
followed Liam in the ambulance to the city hospital, I sat recovering in
 our now empty room.  My mom and dad were there and I am so grateful 
they were, but in my mind, my arms were empty, aching and I was 
alone.....
.....Stay tuned for Our Story - Part 2 on tomorrow's post
 

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