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Thursday, November 5, 2009

11.5.09 - A Day in the Life


Our time at home so far has been really great. Liam is doing really well, and is for the most part a normal and healthy baby! Being a mom is the most wonderful job in the world and I am loving every moment of it!

I have slowly been introducing Liam to some new daily activities that we are going to start doing together. Yesterday, we did some tummy time on a special tummy mat (I just LOVE to finally be able to use all the cool and fun gifts that people have given us!) and Liam did great. I think it was the first time that he has ever been on his stomach...I am not sure it's his favorite activity yet, as he kinda gave me a look like, "Ok, what kind of procedure are you going to do on me now?" but I think he'll get used to it. I was amazed at how he was able to manuever his little head around though. Although, he seemed to tire pretty quickly, so needless to say tummy time didn't last very long.

Today I took Liam for his first outside adventure...ok, so it was just a walk around the neighborhood, but it was very refreshing. Probably more so for me, as I have not set foot outside in I can't remember how long. But it was SO nice outside I couldn't resist. My dad was here, so the three of us took a nice little walk around the block. Liam slept the whole time, so he missed all the scenery, but it's nice to know I have options for making him go to sleep!

It's hard sometimes because I just want to tote him along everywhere I want to go, but he is still so fragile. His immune system is very vulnerable and the doctors say if he even gets a cold or runny nose, it could land us back in the hospital. But keeping him safe and healthy are top priorities, at whatever the cost.

Our next appointment is next Wednesday and Liam will have a repeat Barium swallow study done to see if he can start bottle feeding. Please be praying for us! This is the last step to really being a normal baby and a huge indicator of progress that he is making in his overall strength and growth too. Pray that his vocal chord is moving and that his strength is enough to compensate so he can bottle feed. We are anxiously awaiting the day to say good-bye to that feeding tube!

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