Tuesday, October 12, 2010

10.12.10 - Well check update

Liam had his 1 year well check appointment yesterday.  Let me first say that I was not looking forward to this appointment.  Don't get me wrong, I am SO excited we have come so far and my little man is ONE! But I was nervous.  I have posted before about Liam's eating issues and how eating has become quite stressful for him and us for the past few months, even his tube feedings have been tricky to manage.  Regression is all I seem to be seeing with him.  And my suspicion that he was not getting enough calories everyday was confirmed with a weight check.  Liam weighed in at 19 lbs. 5 oz.  which is down almost a 1/2 a pound from his 9 month visit.

I had been noticing the scale trickling down here and there, every time we go for a sick visit (which lately has been at least once every couple weeks).  And, as you parents know, for sick visits you don't have to get them down to the diaper to weigh.  So, with clothes and helmet, he was pushing just over 20 lbs. each time.  I just never thought we'd be dealing with this for so long....and I know other parents deal with this everyday too.  So stressful sometimes.  I did have our pediatrician give us a referral to another feeding therapy program for a second opinion / consultation.  I feel like we could be more aggressive in our approach and to have someone help coordinate the nutrition side and therapy side together would be great.  And now that I've navigated this route times over, I am going to be more aggressive to seek and find him the therapy he needs.

Liam overall though is doing quite well beyond the feeding.  He is slightly delayed in his physical activity, but we are continuing to do therapy once a week to help get him some muscles!  He is starting to scoot on his bottom EVERYWHERE!  It is so cute and he can really get around pretty quick.  We are hoping this eases into crawling soon.

So here we are.  Liam's next cardiology appointment is at the end of the month, and if he doesn't pack on the pounds in the meantime, I'm going to be even more nervous for that heart moms know the weight thing with our babies....praying for a big gain!

No comments :

Post a Comment