Tuesday, December 28, 2010

12.28.10 - Twas the night

It seems so strange to me that quickly coming on the heels of such a wonderful Christmas holiday, we have to bear a hard upcoming week.  We are getting used to the rollercoaster ride of being a heart family.  I can actually honestly say that this time around, I feel like a seasoned heart mom.  And, I am in good spirits today, despite the long week we have in front of us. 

The pre-op went well today.  Vitals were good, lungs clear and medical history updated (I think this was the 20th time I've given our hospital his medical history...I'm wondering why it's not saved each time?).  Liam was VERY good all day.  Poor thing though, he is much more aware of things being uncomfortable - he had to have blood drawn and an x-ray - he wasn't very happy.  But after reciting the "Hot Diggity Dog" song from Mickey Mouse Clubhouse enough times, he finally settled down (that was the best .99 cent I have ever spent on iTunes).  He did work up quite an appetite as we lunched in the hospital waiting for our meeting with the surgeon....the one that ended up getting rescheduled until tomorrow morning before surgery.  But I knew the routine and planned accordingly, so it didn't bother me in the slightest.  It was actually, dare I say, somewhat nice to be out of the house for a bit!

So here we are.  Going about our daily routine with dinner time, bath time, bedtime and one more tube feeding before he has to fast.  Surgery will be first thing tomorrow morning at 7 am.  We have to be there at 6 to get checked in a "pre-opped" again.  I just wanted to say a heartfelt thank you to all the texts, facebook messages, calls, emails and blog comments from all of you who have been thinking about us and praying for us.  We could not get through this without your support and we are humbled and grateful for every one of you who chooses to walk this journey with us. 

I have recently found a different sort of peace in the Lord's prayer that I haven't felt before.  I think it is a beautiful prayer for exactly what we need from God...

Our Father, who art in heaven, hallowed be thy name. Thy Kingdom come, thy will be done, on earth as it is in heaven. Give us this day our daily bread. And forgive us our trespasses, as we forgive those who trespass against us. And lead us not into temptation, but deliver us from evil. For thine is the kingdom, the power and the glory, for ever and ever.


  1. Saying so many prayers for all of you as you head into tomorrow. I know it will be an emotionally charged morning handing Liam over. {{{HUG}}} I'll be keeping close tabs on all of you tomorrow! PRAYING!!!

  2. Many many (((hugs))) and prayers for you all tomorrow!!

  3. I just came across your blog and will be following! I'll be sending prayers for Liam!!!

    Neysa~ Fellow heart mom

  4. I will be praying for you all day tomorrow Tara. Liam is going to do great!