Plus, we are also waiting on poop. Sorry to bring it up again, but unfortunately its causing some issues...again. He has already been given some Miralax and 2 "bottom pills" and still nothing. My heart breaks for him...the more time we spend here, the more helpless I feel to help him and make him feel comfortable. I think the hospital setting is really starting to wear on me...
Good news is I promised a post on a new program that MC started with their heart children so here it is! The program is called Beads of Courage, and a lot of hospitals participate in the program. It initially started as a program for cancer patients, but they developed one for cardiac kids. Liam will get a bead for every thing he goes through for his heart condition. From a I.V. stick to intubation to heart surgery, they have special beads for all kinds of procedures and milestones.
And each time he experienced something, he gets a bead. The surgeons assistant, Kathy, started Liam's bead chain for us already and caught us up through this surgery. Here is picture of Liam's beads of courage:
Of course, we have also earned a few additional beads since we have been here =), so they give you a sheet to track things on so when you visit your cardiologist, they can give you your beads. It's a great program to have something tangible for when Liam is older to visibly show, besides his scars, what all he has been through. I think it will be very special for him as a keepsake.
I'll end tonight with some snapshots from the hospital...these were taken Monday I think...
Had to catch this cute pic of Liam and monkey....monkey has been very useful in many ways here, especially good at holding up the vent tube =)